Wednesday, March 5, 2008

Gilbert's Disease

Don'tcha love the internet:
(Thanks, Marg)

The Gilbert's Syndrome Story
If you're like many people diagnosed with Gilbert's Syndrome, you've been on a long journey to find out what's wrong with you, visiting doctor after doctor and coming up with nothing. And then one day, a doctor tells you that you have Gilbert's Syndrome but that it's not the cause of your problems because their desk reference says that there are no symptoms.

Luckily, it is not life threatening. But this may also be the reason is doesnt get the attention it deserves.

From an exhaustive study of the symptoms reported by 283 people with Gilbert's Syndrome on the Gilbert's Web forums over the past 5 years, here are the symptoms of Gilbert's Syndrome.

Frequently Reported: fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, nausea, loss of appetite, irritable bowel syndrome (IBS), stomach pain & cramping, liver/gallbladder pain, abdominal pain, tremors, itchiness, jaundice

Commonly Reported: insomnia, difficulty concentrating, panic attacks, hypoglycemic reaction to foods, intolerance to carbs, food intolerances, alcohol intolerance, loose stools / diarrhea, abdominal bloating or swelling, breathlessness or labored breathing, heart palpitations, aching muscles / body ache, joint pain, numbness & tingling, weakness, chemical sensitivity, weight loss, lump in the throat, feeling constantly sick

Sometimes Reported: difficulty finding the right words, feeling drunk, vomiting, intolerance to fatty foods, strong hangovers, acid reflux, excessive thirst, chest pain, muscle twitches, cold hands and feet, environmental allergies, swollen lymph nodes, toxic feeling, bitter or metallic taste in the mouth, eye pain.

I've purpled the symptons that dad's been dealing with lately.

So, there you have it.
Nothing they can do for it. It's genetic and he's likely had it his whole life.
But he's going to stay in the hospital until he can walk again. And based on how weak he was when I visited him this evening - that could take awhile.

Thanks for praying for us, you are awesome.

1 comment:

Alberto said...

I believe calling Gilbert's syndrome a medical drama is totally inappropriate. It's a totaly benign condition, up to 10% of male caucasians have it, it's not a disease. I believe calling it syndrome can be confusing. Best wishes.